A few things happened today which were pleasing and positive:
1. Mitch had his procedure (the power picc) placed early this am.
2. Dr Yankaskis took time out from his busy schedule this am to speak with us and put everything in perspective. Yet, it was a more general clinical comparative perspective and perhaps made us feel at ease, but was not completely specific to Mitch's case,- specifically, because he had not seen the notes from the latest bronch, per se. We took from our conversation that these are the hurdles we must face but we will be ok/alive-
Although the causal relationship is still unknown-
the stenosis from the infection? the infection from the stenosis? (opinions contradict or compliment, anatomical vs. medical depending on who you speak with and when)
Perhaps its all the same; the healing process, the inflammation causes infecton, causes stenosis; A cyclical relationship rather than lineal, or causal.
3. The transplant team came and spoke with us in depth about our concerns. This was enlightening because we learned some things: diagnostic instruments such as xray, stethoscope, and blood test are not always good indicators for infection. i.e, Mitch has this CRUDD in his airways that needs to move out, and since he cannot cough well yet or have the coughing reflex since the transplant yet , but his white blood cell count is normal, his xrays are normal, yet he sounds noisy, wheezy, etc. So they said the bronch is the only tool they have to "see" the infection/congestion. Who knew? Oh, and most pleasing- these infections from his CF bugs- they are saying the infection is from his old bacterial strains dripping down and colonizing the airways from the connection and also his sinuses- these bacterial infections have NOT been shown to create acute rejection. The infections that can cause rejection by awakening his sleeping immune system are viral.
4. The first results came back from the biopsy and there is still no sign of rejection!
5. Mitch came home this afternoon.
6. We can still go home to Maryland next week to eat Turkey, but NO FRUIT SALAD!!!!
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7 comments:
that is a great, great update. 3 steps forward... 1 step back. keep pushing forward!
love eric
I am so excited to see you all............I also learned where the term CRUDD comes from. See how smart we are all getting???
Keep the good news coming, THat is an order!
Renee
great to hear all the commments. thank you so much for keeping us in the loop... sending wishes for a great week of healing and a good trip to Maryland for Dia de Gracias !! Love Jea
Awesome. So good news while feeling not so good. Fantastic. Also a chance to go and see family for Thanksgiving is wonderful. Lots of smiling around that table. I'm so glad that you have been reassured. We are all very grateful for the continued strength of you Mitch and your guardian angels in Chapel Hill. Rebecca - you are so amazing and your superwoman cape is really coming in handy. My thoughts and prayers are with all of you. Love Joan.
Your family is always in my thoughts and prayers. Happy Thanksgiving. There is a lot to be thankful for. Love, Andrea
Set-backs are expected. I'm just sorry Mitch has to suffer through them. But "this too shall pass". Hope you knock out that CRUDD soon. Thanks for educating us and giving us the whole perspective. Hugs to you both!
Love, Lynn
Hang in there guys, glad to hear there is no infection and that you are all able to go home for gobble gobble day! The updates are so great and so informative. I am thankful for you all and so happy things are going forward, minus a few set backs but that is expected. Gators should be able to knock of FIU this weekend, but they better tighten up or Bama could have our number. Love to you all XOXO
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