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We picked Mitch up from the hospital Tuesday night after "meet the teacher" evening at Mary Scroggs Elementary, and we brought him to our home in Chapel Hill. Simon and Matias started first grade on Wednesday. And get this! Mitch actually got on his bike and went with me to pick up the boys in the afternoon. He even pedalled a bit (its an electric bike- but even holding himself and bearing the heat was tough. He really wanted the boys to be happy he made it, and they were!
Mitch is losing fluid. He now weighs 137, which is coming down nicely. His potassium is UP again to the 6's so he is drinking a med to adjust that, hopefully promptly. His PFT's today at clinic were 35%%. Dr Lobo said that is because of the fluid and will get better. Docs are pleased with his progess. His kidneys are in a normal range now. He got a shot to raise white blood cell count- its too low now- because of the campath protocal he had to avoid rejection- which is basically like chemotherapy.
Really thinking about those who are still having a hard time in the hospital and fighting very hard,...really hoping it all works out for you, very soon...
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6 comments:
That's excellent! Good work on the bike. I'm so thrilled to hear that you're improving; it'll pick up from here.
We're thinking about you all the time up here in VA.
best,
Chris Broom
Mitch - nice to see you sitting on the couch. Love it. Enjoy your days back where you worked so hard to get to. love and hugs, joan. xoxoxo
Hi Beautiful Family. So happy to see you all together at home and on the bikes. Thank you for the news and photos. xoxoxoxo Mom
Mitch,
It was very touching to see the photos of you with your family and on your bike with the boys. Rebecca, Simon and Matias look ecstatic to have you home. I'm so happy to see you, and hope each day brings some improvement. Love, Lynn
What great pictures!! Excellent news!
A-mazing! You the man. How'd you like the feeling of wearing a girdle? Ha ha! Tell Si & Mati the monster can't wait to come scare them! Can't wait to see you guys.
XOXO L & F
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