Status: Still in the Slammer; 30 days Post Second Transplant

44 days total. I hope he comes home soon, but it will not be today. We are waiting in his room for them to take him to have a bronchoscopy- the one month bronch already! They may take a biopsy so they stopped his IV heparin. Mitch still has major edema and pulmonary edema. The past week we had a real scare with his kidneys so they had to stop the lasix last weekend. His kidney (creatinine levels) were very high topping at 3.1 . They mentioned dialysis (yikes!) and lowered all necessary meds and took him off everything else, liquid restriction, etc.. All week we have been waiting for the kidneys to recover and they have very slowly been ebbing down, but still in the danger zone now at 2.4 , this am. Also, his electrolytes are imbalanced and they have been trying to cut his potassium level with a disgusting drink and IV insulin cocktail. He received more blood on Tuesday night.
Mitch has been down this week, emotionally. Totally exhausted, periods of semi-conscious wake-dreams, very uncomfortable with the 25-30 extra pounds of fluid he can't get rid of and feeling scared and defeated because he can not take a deep breath because of all this fluid. He is on 2 liters of oxygen and sometimes 3. He won't be able to breathe until the fluid comes off because there is just no space for his lungs to expand.
The doctors said that it is a waiting game, as far as the fluid is concerned. If everything goes ok with the bronch, then maybe he will be able to come home on Monday, on oxygen. I don't think staying in the hospital any longer will be wise from a mental health standpoint. This is long enough, he is starting to dub his iv pole, Rebecca, and other medical instruments after Simon and Matias.