Mitch made it two weeks! He has all 4 chest tubes out, and is taking 4 good walks per day. He has a bit of infection in his new lungs from his old connections and old bugs seeping into the new lungs. So, his routine is very familiar to him now- its like a regular old CF tune-up: chest PT, IV antibiotics and nebulizers 4 times/day. We hope this is the last time he needs a tune-up. He will go home on IV antibiotics. But hopefully, he will be off of them soon enough.
There is definitely discussion of going home. Its been brought up many times. Mitch has to be comfortable with going home, and ready. We start the education tomorrow. A lot to learn about caring for himself and his new life with new lungs. There are certain foods he may no longer enjoy- sushi- (sorry Julie and Roy no more Raku, NOT! we can still go- he will just have to eat the cooked stuff!) , raw fruits and vegi's (mostly because of bacteria and the immunosuppressants). Also, he cannot do any gardening!
Darn! He will be reaallly dissapointed about this.
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7 comments:
Hip Hip Hooray. Good luck with Going Home ! Best !!! Jean and Paul
Yay for going home! Just wondering, are those diet changes permanent or just for the time being?
Don't worry, those restrictions are not forever. Each one lifted is just another milestone.
Ian
Cheers to you! your health care professionals! and your family!
Mitch, You are my hero! After fighting your whole life to breath you have faced the biggest fight of your life with strength, bravery, endurance, and most important a positive attitude. I have read and fallowed your "aadventure" and have sat here in amazement and admiration. You have never let any grass grow under your feet. Continue to live and enjoy your new found health. I know you will.
Mary Chesley Finley
Mitch, so great to hear the positive news that keeps coming. Keep up the hard work!
Sara Granet McDonough
Yay! Simon & Mati will be so excited! Oh darn, I'm sure Mitch is soooo upset about not being able to garden. ;) Looking forward to reading about the rehab process and can't wait to see you again soon! Much love, Lyz
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