Wednesday, July 21, 2010

Second Chance




Hi. These were taken before they took Mitch back for his SECOND double lung transplant surgery .


The opportunity could not have come later, as each day was becoming more and more tragic and terrifying.
What started less than 3 weeks ago, after a clarifying and conclusive wedge biopsy, that diagnosed Mitch's transplanted lungs with aggressive Bronchiolitis Obliterans Syndrome (BOS), the downward spiral began. BOS, a form of chronic rejection, is unusual in the first year post-tranplant and had completely destroyed Mitch's smaller airways and rapidly progressed, beyond treatment. It could have involved, theoretically, yet inconclusively, all the narrowing and airway issues he had from six weeks post-transplant and over the past 10 months. BOS ultimately presented as a drop in oxygen saturation during activity, and then overall- which developed in early to mid-June to a rapid and complete/conclusive decline with cell diagnosed BOS in early July/late June. However, Mitch has had a steady decline in Pulmonary function over the past 5 months.

Mitch has been in the Intensive Care Unit for 8 days, after a steady and horrifyingly rapid decline over the past 2 weeks since he was admitted to the hospital (UNC-CH)- For example, today, i.e., even on 100% oxygen, any effort or movement required him to gasp and struggle to recover for about 5-10 minutes. We wondered what lie ahead the past few days, with great despair, yet still hopeful, waiting for a donor but in moments imagining the torturious and painful future so many endure who succomb to illness--
Yesterday, Mitch hit a wall of sorts; which for him is HUGE, as you know. He is so brave and never complains or frets but is always optimistic--... Which was why it was so striking when he said he felt he was near death. I don't mean to scare you, my friends, - I just wanted you to know how fortunate and timely this organ donor is- whatever the outcome--- There really, was not much more time for success to be had, if it may.

This morning came, and a possible donor was found. We waited for hours for the final call- until 4pm this afternoon when they took him back into surgery.

I will let you know more details when they come but we are hoping that the second set is the right set and the last time was practice..
Oh, and they are doing a special "different" protocal which may really be great for his success and to avoid similar issues in the future.

11 comments:

joan said...

good luck mitch & reba. much love joan.

Anonymous said...

We're thinking of you every minute and sending you lots of love. Rob and Rachel

Anonymous said...

the both of you are simply amazing. your strength is incredible and we love you. will be thinking about you and can't wait for more updates.

eric & sarah

Anonymous said...

Your family remains such an inspiration to those of us in the CF community! I will be waiting for wonderful news!

Much love,
Kelli Clark

Anonymous said...

Reba, thanks for keeping us up to date in the midst of all that is going on. We've been hanging on every post this week, thinking about you Mitch and you and the boys. Much love and I know absolutely that Mitch will be better and stronger than ever. JD

elyserw said...

Our optimistic thoughts are with you.
Elyse and Allan Weiner

Lynn said...

Rebecca and Mitch,
Hope this 'special protocol' is what you need to make the new lungs bond with you. We are with you in spirit through it all.
Love, Lynn

Anonymous said...

I'm an acquaintance of one of Mitch's blog buddies, and I just wanted to remind you that for every person you know who leave you a comment of support, there are others out here quietly pulling for you. Mitch is in my thoughts tonight.

Stephanie aka PinkPigg said...

So glad Mitch got lungs. The second set is always the best anyhow.

Peace,
Steph

Anonymous said...

Mitch,

We're praying for you and know deep in our hearts this will be succesful. Much love

Michael and Dara

Will Cramer said...

Vicky and I are both thinking of you and waiting on tenterhooks for any news of the operation and the new lungs. Good luck, good luck!