Yes, I will admit the Phish references are probably overboard by now, but honestly they just make sense.
Slave starts our journey into attempting to grasp the quickly approaching reality that I, in order to have even a small chance to live, need to have a second double-lung transplant.
"Seen the City, Seen the Zoo, Traffic Light won't let me through", those are the only lyrics to an instrumental song that lasts about 10 minutes. It sums up perfectly what I am about to experience. Frustration, out of ones control, and confusion come to mind when you read those words. That is the journey we are embarking on. Yet, that song, on occasion, is capable of being one of the most uplifting, miraculous, awe-inspiring, pieces of music ones ears can hear. There have been many tears shed during this song, by myself and Reba just the other night, and by thousands of others I am sure. Because in the music everything becomes completely clear. All the questions are answered, and everything is perfect. From complete frustration and not knowing to peace, harmony, and acceptance.
That is the theme of this second half of the blog. Embarking on a journey where the start is out of our control and we have such a sense of helplessness, but the end will be clear and perfect no matter what happens.....
So, it begins.
Thanks,
Mitch
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9 comments:
It's hard to know what to say but I want you and Rebecca to know that we are here for you and we wish you the best possible journey on the days ahead. Love Jean and Paul.
I wish I was as good at expressing my thoughts and feelings as you are. The music doesn't give me the answers, only hope, that the traffic light turns green for you.
You are an inspiration!
Love, Lynn
As with your postings on Down with Disease, your first words on Slave are filled with grace and enlightenment. I hope and pray the traffic light turns green for you and your family. You are remarkable and inspiring.
Scot
Mitch you will always be the "Wind beneath my Wings". We will endure this journey together as well. Love mom
I'm relieved that you've been offered the chance of the second transplant and will be following your progress with baited breath. I won't pretend it hasn't been difficult to read about your trials and tribulations over the last months from the position of a fellow transplantee, but I have the maximum possible amount of admiration for you and your family. Just hold on to the fact that next time it WILL all work and WILL be brilliant. Good luck and positive vibes from across the pond. Will and Vicky
So I am still processing all of your information as it has brought tears of both joy and sorrow to our hearts, and I know this next part of your journey will continue to do the same. So without being to mushy green means go, so that is what we are looking forward to seeing and sending all of our good vibes towards you all. We love you guys! Here is a little song lyric from my favorite band, you may have heard of them, DMB :)
Whatever tears at us
Whatever holds us down
And if nothing can be done
We'll make the Best of What's Around
This next lyric makes me think of you and Reba
You and me together
we could do anything, baby
you and me together yes, yes
you and me together
we could do anything, baby
you and me together yes, yes
you and i were not tied to the ground
not falling but rising like rolling around
eyes closed above the rooftops
eyes closed were gonna spin through the stars
Our arms wide as the sky we gon ride the blue
all the way to the end of the world
to the end of the world
XOXO The Buttress Crew
I am behind you a thousand percent. This blog is awesome and you are inspiring to all it's followers. You are creating positive change in people, myself included. The more you fight, the more we learn and change. I predict a KO victory in Round 2 for Mitch.
Mitch and Reba (and all others),
I may not know Phish, but I know U2. One of their songs, Some Days are Better Than Others, pretty much sums up how you must be feeling now:
Some days are dry, some days are leaky
Some days come clean, other days are sneaky
Some days take less, but most days take more
Some slip through your fingers and onto the floor
Some days you're quick, but most days you're speedy
Some days you use more force than is necessary
Some days just drop in on us
Some days are better than others
Some days it all adds up
And what you got is not enough
Some days are better than others
Some days are slippy, other days sloppy
Some days you can't stand the sight of a puppy
Your skin is white but you think you're a brother
Some days are better than others
Some days you wake up with her complaining
Some sunny days you wish it was raining
Some days are sulky, some days have a grin
And some days have bouncers and won't let you in
Some days you hear a voice
Taking you to another place
Some days are better than others
Some days are honest, some days are not
Some days you're thankful for what you've got
Some days you wake up in the army
And some days it's the enemy
Some days are work, most days you're lazy
Some days you feel like a bit of a baby
Lookin' for Jesus and His mother
Some days are better than others
Some days you feel ahead
You're making sense of what she said
Some days are better than others
Some days you hear a voice
Taking you to another place
Some days are better than others
Wishing you many more of the better type of days ahead.
Love,
Troy, Felicia, Izzy & Lexi
Mitch, may the traffic light turn green for you. I'm following every word. Thank you for putting up such a fight. This world is a better place because of you. Your friend in Alaska, Jenni
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